The Larkins Family: down syndrome

Showing posts with label down syndrome. Show all posts

Monday, March 21, 2016

World Down Syndrome Day 2016

Today is World Down Syndrome Day (3/21 as in 3 copies of the 21st chromosome). Last year this fell on a Saturday so we went to the Special Needs Day at the train park in the morning and a Down Syndrome event in the evening (here). We won't be able to go to the event tonight since it is hard enough to get home before 6:00 p.m. anyways and it is all the way in Tempe but we sure do love our Cam and will be face timing with him tonight for sure. He definitely did not get handed anything easily but he is one tough little guy and sure lucked out in the mom department. He works so hard several hours every day and is the sweetest little guy. He always gives kisses when we face time him and is so good with the babies. I love how he loves to hold hands and I hope he never grows out of that. We love you Cam!

Tuesday, March 24, 2015

World Down Syndrome Day 2015

Last Saturday was World Down Syndrome Day (3/21). We ended up going to two different events to celebrate my nephew Cameron. The first was special needs day at McCormick Stillman Railroad Park. We have been to this event for the past 3 years now and we have fun every year. It is always pretty packed and tends to get warm out but the kids have a blast. This year Everly went down a big blow-up slide by herself and all of the kids went on the live steamers which we haven't done before. Justin and I also walked Teddy and Everly through the old rail car that they have that several Presidents rode in. They liked seeing all of the toilets, haha. After the park we went home and rested and cleaned up before heading out to a festival held by the Down Syndrome Network of Arizona. It was way out in the East Valley but worth it. The kids had a lot of fun. They had a bounce house, playground, a fire truck, carnival games, dancing, a photo booth, and princesses. By the end of the night we were exhausted and ready to go home. Everly passed out so you know it was a good day. We love our Cam and are so happy we got the chance to celebrate with him.

These two love chasing each other.

Live Steamers

Walking through the historic Pullman Car

If one does it, the other has to also.

Checking out the oo-ee truck.

Dancing away

Aspen just wanted to chew on the lips.

Grandma and Teddy

Wednesday, October 3, 2012

Sharing Down Syndrome Walk

A week and a half ago we participated in the Sharing Down Syndrome walk in support of my nephew Cameron. This was our second year participating. Last year Cameron was only a few months old and I was still pregnant. We raised around $500 last year, but this year we had more time to plan for everything and it was a huge success. Cameron's Crew raised $1,830.00 and was the 10th highest in donations raised. We all had matching shirts and provided them to people who came out to the walk. I designed them and my future-brother-in-law got them donated and organized it all. Everyone reached out for donations and we were so grateful for everyones generosity. It was still pretty warm out and Everly fell asleep on my shoulder towards the end of the walk, but it was a great day and a lot of fun! Here are a few pictures of the day!